{"id":32330,"date":"2024-03-30T14:57:44","date_gmt":"2024-03-30T13:57:44","guid":{"rendered":"https:\/\/carpem.fr\/?p=32330"},"modified":"2024-10-30T15:43:04","modified_gmt":"2024-10-30T14:43:04","slug":"portrait-of-collaborative-caregivers-at-siric-carpem","status":"publish","type":"post","link":"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/","title":{"rendered":"Portrait of collaborative caregivers at SIRIC CARPEM"},"content":{"rendered":"

[vc_row][vc_column][vc_single_image image=”31809″ img_size=”full” alignment=”center”][vc_column_text css=””]On the occasion of the National Cancer Fighting Week 2024<\/strong>, we invite you to discover throughout the week our committee of patients and caregivers, the Co-TREx<\/strong>, as well as the profiles of the patients and caregivers who support us at SIRIC CARPEM.[\/vc_column_text][vc_separator border_width=”4″][\/vc_column][\/vc_row][vc_row][vc_column][vc_single_image image=”31840″ img_size=”full”][\/vc_column][\/vc_row][vc_row][vc_column width=”1\/4″][vc_column_text]<\/p>\n

Laure<\/h3>\n

[\/vc_column_text][vc_single_image image=”31828″ img_size=”50×50″ alignment=”center” onclick=”custom_link” img_link_target=”_blank” link=”https:\/\/www.linkedin.com\/in\/laure-chotel-b02454242″][\/vc_column][vc_column width=”3\/4″][vc_column_text]<\/p>\n

\u00ab\u00a0J\u2019ai accompagn\u00e9 mon mari, diagnostiqu\u00e9 d\u2019un cancer colorectal m\u00e9tastatique \u00e0 42 ans, durant ses trois ans de maladie. Son cancer \u00e9tant de tr\u00e8s mauvais pronostic, j\u2019ai imm\u00e9diatement cherch\u00e9 des experts nationaux et internationaux pour nous accompagner et me suis investie dans la recherche de traitements innovants pour lui permettre d\u2019acc\u00e9der aux options th\u00e9rapeutiques les plus prometteuses. Cela a notamment \u00e9t\u00e9 possible gr\u00e2ce \u00e0 COLONTOWN, association de patients\/aidants am\u00e9ricaine, \u00e0 la pointe sur ces sujets. Mon mari est malheureusement d\u00e9c\u00e9d\u00e9 en octobre 2023.<\/p>\n

Lors de ce parcours, nous avons rencontr\u00e9 des soignants et chercheurs formidables, dont le Pr Pierre Laurent-Puig, qui m\u2019a propos\u00e9 d\u2019int\u00e9grer le comit\u00e9 des patients\/aidants du SIRIC CARPEM. Le fait que le comit\u00e9 soit partie prenante des projets \u00e0 toutes les \u00e9tapes, permet que les besoins et attentes des patients et des proches aidants soient v\u00e9ritablement pris en consid\u00e9ration dans le cadre d\u2019un travail collaboratif avec l\u2019ensemble des acteurs.<\/p>\n

Au vu de la complexit\u00e9 des cancers, les travaux de recherche du SIRIC CARPEM dans le champ de la m\u00e9decine de pr\u00e9cision constituent un espoir immense pour les patients et leur famille. Trouver de nouvelles cibles th\u00e9rapeutiques, pouvoir les exp\u00e9rimenter dans le cadre d\u2019essais cliniques, regrouper et analyser un maximum de donn\u00e9es sont des \u00e9tapes indispensables pour que l\u2019ensemble des patients puisse acc\u00e9der aux traitements les plus adapt\u00e9s et innovants.\u00a0\u00bb<\/p>\n

[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column width=”1\/4″][vc_column_text]<\/p>\n

ISABELLE<\/h3>\n

[\/vc_column_text][\/vc_column][vc_column width=”3\/4″][vc_column_text]<\/p>\n

\u00ab\u00a0J\u2019ai 62 ans.<\/p>\n

J\u2019ai effectu\u00e9 toute ma carri\u00e8re professionnelle \u00e0 l\u2019\u00e9ducation nationale comme enseignante puis chef d\u2019\u00e9tablissement.<\/p>\n

Mon compagnon est d\u00e9c\u00e9d\u00e9 deux mois avant mon d\u00e9part \u00e0 la retraite. Il \u00e9tait atteint d\u2019un my\u00e9lome multiple<\/p>\n

Nous avons v\u00e9cu le meilleur dans la prise en charge m\u00e9dicale et humaine avec les soignants mais \u00e9galement le pire.<\/p>\n

Nous habitions en r\u00e9gion parisienne, je suis depuis partie m\u2019installer \u00e0 Marseille, poursuivre ma vie.<\/p>\n

J\u2019ai souhait\u00e9 partager mon exp\u00e9rience, valoriser le r\u00f4le des aidants.<\/p>\n

Dans cet objectif, je participe au comit\u00e9 de patients dans le cadre de l\u2019am\u00e9lioration de leur prise en charge puis aux r\u00e9unions du Co-TREx.<\/p>\n

Au-del\u00e0 de mon v\u00e9cu douloureux, je suis persuad\u00e9e de la n\u00e9cessit\u00e9 de l\u2019engagement des patients dans l\u2019exp\u00e9rimentation et l\u2019acceptation de l\u2019utilisation de leurs donn\u00e9es biologiques et m\u00e9dicales.<\/p>\n

Comment, pour cela, leur donner une information compr\u00e9hensible par tous\u00a0?<\/p>\n

Comment les convaincre d\u2019int\u00e9grer un protocole de recherche et les accompagner, dans le respect de leurs droits et de leur cheminement personnel ?<\/p>\n

Comment faciliter et acc\u00e9l\u00e9rer l\u2019acc\u00e8s des patients aux traitements innovants\u00a0?<\/p>\n

Je pense que l\u2019expression de nos diff\u00e9rents points de vue de patients et d\u2019aidants et notre engagement aupr\u00e8s des chercheurs sont enrichissants et novateurs dans le SIRIC CARPEM.<\/p>\n

Ces \u00e9changes vont dans un seul et m\u00eame sens, am\u00e9liorer la prise en charge des patients atteints de cancer, et permettre aux patients d\u2019avoir acc\u00e8s aux traitements les plus innovants.\u00a0\u00bb<\/p>\n

[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column][vc_single_image image=”31809″ img_size=”full” alignment=”center”][vc_column_text css=””]On the occasion of the National Cancer…<\/p>\n","protected":false},"author":5,"featured_media":31810,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[318,410],"tags":[],"class_list":{"0":"post-32330","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-latest-news","8":"category-actions-thematiques-en"},"yoast_head":"\nPortrait of collaborative caregivers at SIRIC CARPEM - Carpem<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Portrait of collaborative caregivers at SIRIC CARPEM - Carpem\" \/>\n<meta property=\"og:description\" content=\"[vc_row][vc_column][vc_single_image image=”31809″ img_size=”full” alignment=”center”][vc_column_text css=””]On the occasion of the National Cancer...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/\" \/>\n<meta property=\"og:site_name\" content=\"Carpem\" \/>\n<meta property=\"article:published_time\" content=\"2024-03-30T13:57:44+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-10-30T14:43:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/carpem.fr\/wp-content\/uploads\/2024\/03\/Image-mise-en-avant-scaled.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"728\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Claire Lailler\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Claire Lailler\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/\"},\"author\":{\"name\":\"Claire Lailler\",\"@id\":\"https:\/\/carpem.fr\/en\/#\/schema\/person\/906ff34cb0cbaf6ff804f1a5500140a2\"},\"headline\":\"Portrait of collaborative caregivers at SIRIC CARPEM\",\"datePublished\":\"2024-03-30T13:57:44+00:00\",\"dateModified\":\"2024-10-30T14:43:04+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/\"},\"wordCount\":686,\"image\":{\"@id\":\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/carpem.fr\/wp-content\/uploads\/2024\/03\/Image-mise-en-avant-scaled.jpg\",\"articleSection\":[\"Latest news\",\"Thematic actions\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/\",\"url\":\"https:\/\/carpem.fr\/en\/portrait-of-collaborative-caregivers-at-siric-carpem\/\",\"name\":\"Portrait of collaborative caregivers at SIRIC CARPEM - 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