{"id":32290,"date":"2024-10-30T12:26:59","date_gmt":"2024-10-30T11:26:59","guid":{"rendered":"https:\/\/carpem.fr\/?p=32290"},"modified":"2024-10-30T12:29:44","modified_gmt":"2024-10-30T11:29:44","slug":"dynamic-consent-in-the-fight-against-cancer","status":"publish","type":"post","link":"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/","title":{"rendered":"Dynamic Consent in the Fight against Cancer"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column][vc_column_text css=&#8221;&#8221;]This video presents one of the main projects of SIRIC CARPEM, which aims to implement dynamic consent by evaluating the acceptance of such consent among patients and healthcare professionals. This consent will be based on a digital interface that allows patients to adjust their consent over time as new knowledge is acquired and may lead to the reinterpretation of results and\/or the reuse of samples.<\/p>\n<p>We have chosen to work with patients by inviting them to register on the Nutrinet Sant\u00e9 platform in order to test dynamic consent in &#8220;real life&#8221;. Subsequently, this will allow us to assess the acceptability among patients and institutions of linking Nutrinet Sant\u00e9 data with hospital clinical data through the dynamic consent digital platform. This platform could become an invaluable source of information.<\/p>\n<p><iframe title=\"Le consentement dynamique dans la lutte contre le cancer.\" width=\"1170\" height=\"658\" src=\"https:\/\/www.youtube.com\/embed\/ZP7pU7PUhMo?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Presentation of the CARPEM Program 3<br \/>\n<a href=\"https:\/\/carpem.fr\/programmes\/programme-3\/\">https:\/\/carpem.fr\/programmes\/programme-3\/<\/a><\/p>\n<p>Home page of the CARPEM website:<br \/>\n<a href=\"https:\/\/carpem.fr\/\">https:\/\/carpem.fr\/<\/a><\/p>\n<p>Nutrinet Sant\u00e9 Study Website:<br \/>\n<a href=\"https:\/\/etude-nutrinet-sante.fr\/\">https:\/\/etude-nutrinet-sante.fr\/<\/a><\/p>\n<p><a>Retranscription de la vid\u00e9o<\/a><\/p>\n<p>Modern cancer research relies on translational research, a continuous exchange between three key players: the patient, the researcher, and the clinician.<\/p>\n<p>Fluid data communication between these three parties is essential to the success of this approach.<\/p>\n<p>Technical advancements support this effort. The development of big data, AI, and biobanks allows patient data to be exploited in large quantities, over the long term, and across a wide variety of sources, which greatly expands research possibilities.<\/p>\n<p>However, all these exchanges are subject to patient consent, the formal agreement allowing the use of their current and past data for a specified period.<\/p>\n<p>In its current form, consent is rigid, making it difficult to reuse past data while ensuring informed communication with the patient. This rigidity hampers progress.<\/p>\n<p>This is why CARPEM is committed to outline a dynamic consent framework that will establish two-way communication between patients and researchers. It will be based on a digital interface that allows patients to update their consent over time as new insights are gained, potentially leading to reinterpretation of results and\/or reuse of samples. Through field studies (questionnaires), CARPEM is testing the feasibility and acceptance of building a dynamic consent platform among patients and professionals.<\/p>\n<p>We have initially chosen to work with patients with Lynch syndrome (and subsequently with patients with solid tumors) and invited them to register on the Nutrinet Sant\u00e9 platform in parallel in order to test dynamic consent &#8216;in real life&#8217;.<\/p>\n<p>Nutrinet Sant\u00e9 allows volunteers to regularly enter a large amount of informations about their health and diet on a website.<\/p>\n<p>Linking Nutrinet Sant\u00e9 data with hospital clinical data via the dynamic consent digital platform would become an invaluable resource. This will enable CARPEM to study barriers to consent and, ultimately, validate the acceptability of data linkage both by patients and institutions.<\/p>\n<p>In this way, CARPEM contributes to the development of ethical practices that align with the demands of modern cancer research[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][vc_column_text css=&#8221;&#8221;]This video presents one of the main projects of SIRIC&#8230;<\/p>\n","protected":false},"author":5,"featured_media":28772,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[314],"tags":[],"class_list":{"0":"post-32290","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-videos-en"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Dynamic Consent in the Fight against Cancer - Carpem<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Dynamic Consent in the Fight against Cancer - Carpem\" \/>\n<meta property=\"og:description\" content=\"[vc_row][vc_column][vc_column_text css=&#8221;&#8221;]This video presents one of the main projects of SIRIC...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/\" \/>\n<meta property=\"og:site_name\" content=\"Carpem\" \/>\n<meta property=\"article:published_time\" content=\"2024-10-30T11:26:59+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-10-30T11:29:44+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/carpem.fr\/wp-content\/uploads\/2023\/09\/img-video-CD.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1127\" \/>\n\t<meta property=\"og:image:height\" content=\"1125\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Claire Lailler\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Claire Lailler\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/\"},\"author\":{\"name\":\"Claire Lailler\",\"@id\":\"https:\/\/carpem.fr\/en\/#\/schema\/person\/906ff34cb0cbaf6ff804f1a5500140a2\"},\"headline\":\"Dynamic Consent in the Fight against Cancer\",\"datePublished\":\"2024-10-30T11:26:59+00:00\",\"dateModified\":\"2024-10-30T11:29:44+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/\"},\"wordCount\":507,\"image\":{\"@id\":\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/carpem.fr\/wp-content\/uploads\/2023\/09\/img-video-CD.png\",\"articleSection\":[\"Videos\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/\",\"url\":\"https:\/\/carpem.fr\/en\/dynamic-consent-in-the-fight-against-cancer\/\",\"name\":\"Dynamic Consent in the Fight against Cancer - 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